Ricky did okay at Dana Farber yesterday, his blood counts were all okay and he's within three ounces of hitting 80 pounds. He was able to get his monthly antibiotic and the Avastin without getting nauseous. He ate a giant slice of cheese pizza and a happy meal before he left for home. Breakfast yesterday was steak tips, rice and green beans.
That's the good news, the bad news is that we had a meeting with his team and while we do not have current MRI or PET scan data, they strongly believe that Ricky's decline is the tumor breaking loose again. They were not optimistic that he has much longer. The amount of time will be determined by where the tumor growth affects his brain functions. There is no "Plan B", we are out of options.
His medications were adjusted to help his fatigue and malaise, in the hopes of increasing his quality of life, and we were given new scripts in anticipation of changes which may include increased seizures and possible pain. We will keep him on the chemo in the hopes that we are holding back the tumor for as long as we can. He has had no pain except for very occasional headaches that are relieved with just a couple of Tylenol.
He got up on time for school, Pat says he was feeling good, for "crazy breakfast" he ate more steak, some leftover duck, french fries and beans.
Thank you for the prayers and good thoughts.
Bill
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