Rick continues to be feeling well. Wednesday we had a neurological exam by Dr. Nicole Ullrich, Director of NeuroOncology at Children’s who has followed Rick for the last couple of years for his Neurofibromatosis (NF). She told us that he is doing “remarkable”. No cognitive or physical affects were noted. Amazing after all he’s gone through, but also why you can never give up hope. No way to know how long we can expect things to last, but for today we seem to have found a way to check the cancer from growing.
She and Dr. Herrington are presenting a paper later this month on the positive relationship between NF and Avastin for treating Stage 4 GBM tumors. Theory is that NF may change the vascular system, allowing for better results than non-NF patients.
His platelets were 56,000 so he’s in good shape for more chemo next week.
School ends next week so he will be going into 4th grade this Fall. I wasn't sure we'd make the end of the school year so this is a great milestone.
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