Enjoying summer camp, feeling okay!

Ricky has been having a great time at camp, and has been able to go everyday without coming home early. Yesterday we were at Dana Farber, Ricky had a good exam and good counts, and he gained more weight (now up to a record 78lbs) so they upped the dosage of some of the prescriptions. He had to have extra Zopham and Benedryl for nausea........but recovered by the end of the afternoon to eat two slices of cheese pizza.

Last weekend we were in Vermont and had a great time, this weekend he is going to Albany to visit his mother's family. He's had a very active summer! The photo is Ricky with his Uncle Doug riding in the truck last weekend.

Bill

Summer camp is fun!

Ricky has had a good week, he has been busy at the All Stars Summer camp put on the CORSE foundation (http://www.patriotledger.com/lifestyle/family/x592698632/Scituate-moms-provide-opportunities-for-children-with-developmental-disabilities) here in Scituate. It's a two week program for special needs kids and Ricky just loves it. He knows many of the people who work so hard on this program, and he's made some new friends as well.

He's feeling okay, somewhat tired, but still so much Ricky. He's had calamari, jalapeno poppers and pizza for breakfast this week. No real issues except a couple of TIAs. We leave Friday to Vermont for the weekend!

Bill

Good numbers at Dana Farber

Ricky's CBC (blood test) results were good yesterday, everything was okay, and his exam was stable. He did have several TIAs Sunday night, which could have been the result of dehydration, we're not sure, but he hasn't had anymore since. He weighted 77 lbs, I thought he would hit 80 lbs since he continues to eat so much. Breakfast yesterday was left over jalapeno poppers and fish and chips.

He has expressed concerns about the tumor coming back, and we're trying to put him somewhat at ease that if it does, we will continue to keep on fighting. But while he remains positive so much of the time, he has his moments like we all do. He has been through so much for almost 2.5 years, or a quarter of his life.

Thank you once more for the good thoughts and the many prayers.

Bill